dementia reframed –
the challenge to change
Dementia Reframed Incorporated is registered as a not-for-profit charity, committed to research and support to improve the well-being of those who care.
DEMENTIA REFRAMED Inc
PO Box 807
PETERSHAM NSW 2049 Australia
ABN: 75 485 271 411
Gaynor’s husband, Charlie Eldridge, was diagnosed with Alzheimer's disease in 2013 when he was 83. He died in November 2018, having been cared for at home. If you had met Charlie, he would have given you his endearing smile and convinced you how easy he was to care for. The reality was different. Committed to caring for Charlie, Gaynor found she could access medical information and task-focussed advice, but little about day-to-day relationships and challenges. She did, however, find many warnings about the ‘carer burden’ and became determined to avoid it. Charlie was the reason we embarked on this journey to reframe dementia – to inspire more positive attitudes and facilitate carers. He continues to challenge and teach us!. Discover Charlie's Shed!
our Project Leaders
Jane Mears and Gaynor Macdonald are academic researchers who created the Dementia Reframed project in 2015, to help change attitudes and explore better ways to support carers.
Associate Professor Jane Mears
President, Dementia Reframed Inc.
Dr Jane Mears is an Associate Professor in the School of Social Sciences and Psychology at Western Sydney University.
Jane has been researching caring since the mid-1980s, focusing on the care workers, both paid and unpaid. She also researches, writes and teaches about policies and practices of relevance to ageing, caring, disability and violence prevention. Underpinning her work is a commitment to protecting human rights and working towards social justice and social change.
Contact her at: email@example.com
Dr Gaynor Macdonald
Secretary, Dementia Reframed Inc.
Dr Gaynor Macdonald is a Senior Lecturer and Consultant Anthropologist in the Department of Anthropology, University of Sydney.
As a social anthropologist, with experience as a dementia carer, I draw on anthropology’s insights into the diverse cultural understandings of personhood, dementia and illness, life and death, relationship and care. I want to foster interdisciplinary discussion about ways to understand, represent and respond to dementia as part of the human social experience. Our value as persons as well as the quality of our social relationships are influenced by philosophical and social ideas, as well as economic and medical ones. We need to critique the structures, values and idea that stand in the way of creating a more caring society, in which people of all ages, all walks of life, all ethnicities, and all vulnerabilities, are held in the connection that is life.
Contact her at: firstname.lastname@example.org
Dr Meg Smith
Cartoonist, Dementia Reframed Inc.
Dr Meg Smith worked as a community educator at Leichhardt Women’s Community Health Centre and later as a coordinator of the Depression and Mood Disorders Group in Sydney. Her cartoons were used to illustrate many of the women’s health leaflets and the newsletter of the mood disorders group. Meg was a councillor of the Disability Advisory Council of Australia and her cartoons appear in some of their publications.
Meg finds her best inspiration comes during bureaucratic meetings and academic boards. She draws her cartoons on the agenda papers. She is disappointed that her cartoons did not count as a publication when she worked as an academic at the then University of Western Sydney.
Meg ‘s cartoons are copyright free except to profit making organisations and corporations.
Other members of Dementia Reframed's committee
Mrs Glenis Rubin
Vice-President, Dementia Reframed Inc.
Mr Ashley White
Treasurer, Dementia Reframed Inc.
Mrs Felicity Gay
Committee Member, Dementia Reframed Inc.
Katherine (Kate) Guinane
Committe Member, Dementia Reframed Inc.
Committee Member, Dementia Reframed Inc.
our RESEARCH ASSOCIATES & ASSISTANTS
Lucie Downer (2019 to current)
Operations Manager, Dementia Reframed. Currently completing a Master of Public Health, University of Sydney.
Lucie has an interest in Indigenous health, and medicalisation as social and political process. She experienced her grandparents living through dementia and brings her significant energies and commitment to the work of Dementia Reframed in various ways, including our workshops series.
Olivia Hussey (2020 - 2021)
Social Media Officer
Stephanie Macinroe (2019 to 2020)
Social media Officer.
Marguerite Kelly (2018-2019)
Research Associate in the Department of Anthropology, University of Sydney, and PhD candidate in the Medical School, Australian National University.
Marguerite has worked as a researcher on various social, psychological and public health projects, and as a counsellor with diverse groups and populations. She is passionate about social justice and fostering social well-being across the lifespan. Her current research explores what it means to age and die well in both our current and imagined social landscapes. Marguerite’s research privileges voices, often unheard, of those with daily lived experience, to deconstruct dominant discourses and create momentum for social change.
Contact her at: email@example.com
Meg MacCallum (2018 to current)
Research Associate for Dementia Carers - Australia. Honours graduate in Anthropology, University of Sydney. Dementia carer and Youth Worker. Interested in support for informal community-based care and social activities for vulnerable people.
Contact her at firstname.lastname@example.org
Kate Guinane (2018 to 2019)
Research Associate in the Department of Anthropology, University of Sydney, and about to embark on training in psychoanalytic counselling and palliative care.
Contact her at email@example.com
Ailin Naderbagi (2016-2018)
Research Assistant, and PhD candidate in the Department of Anthropology, University of Sydney.
Chelsey Dyer (2015)
Our first research assistant, who set the bar high in her thorough searches to get us on our way. Chelsey was also inspired by those in her own family who have ‘lived with dementia’.
COllaboratIONS & sponsors
Dementia Reframed would also not be possible with out Collaborations and our Sponsors, please take the time to find out more about them.